'; setTimeout(function() { var videoIframe818385084380900232Actual = document.getElementById("video-iframe-818385084380900232").contentDocument; videoIframe818385084380900232Actual.open().write(videoIframe818385084380900232Content); videoIframe818385084380900232Actual.close(); }, 500);

Linda and Larry Drain

0 Comments

DBSA PRESIDENT Allen Doederlein will visit across Tennessee

7/9/2014

0 Comments

 

Daisy Jabas, Assistant Director, submitted this abbreviated itinerary:

I wanted to give each of you Allen Doerderlein's Tennessee visit intenery as it is known now.

July 23rd or 24th, arrive in Maryville, Tn
July 24th- 6 pm presentation for Larry Drain's Speaker Circuit
July 25th- 6 pm Nashville presentation/ reception
July 26th-Nashville Picnic for DBSA Members
July 27th - Arrive in Jackson, TN, DBSA Jackson Doerderlein event (leave Jackson that evening or on e 28th)
July 28th- DBSA Memphis Doerderlein event
Allen says "so long Tennessee, I shall return soon."  on Monday the 28th orTuesday the 29th
Return to Chicago.

More details of all events will be shared as they are organized. Everyone is invited to attend all events,and encouraged to do so, wherever the event is being held. I know that I am like all of you, eagerly awaiting and very excited about Allen's visit. Please keep me informed regarding all aspects of his visit as your Chapter creates them.

Our Doerderlein Event Committee is hard at work, planning and organizing details for a very productive and successful visit. Thank you everyone for your help with this and more so, thank you for your continued dedicated work for all those that live with mood disorders in Tennessee.

0 Comments

Larry and Linda need help and get notice!

7/7/2014

0 Comments

 

Exciting news is always welcome. One of our own steps out to bring national attention to those suffering due to lack of medical healthcare coverage.  Links to articles in The Tennessean and USA Today are below.

Larry Drain, DBSA Tennessee Legislative Liaison, is well known among many for his staunch work in advocacy for health care for all. Larry and Linda Drain share their story, open up their lives, in hopes that many will find the help they need. After 33 years of marriage, Larry and Linda had no other choice but to separate in order for Linda to keep the healthcare coverage she so desperately needs. Also, Larry is without healthcare coverage because his income is "too low" to meet the requirements for coverage.


The NBC Today show asked to interview Larry and Linda. The interview is expected to happen today. Airing of their interview is expected some time this week. Let's all send our best wishes and thoughts to this couple as they do all that they can to see that no one else needlessly suffers in like fashion.


Respectfully, 
Steve Brannon
State Director
DBSA Tennessee


Links to Larry and Linda's story:

http://usat.ly/VSQXne

http://tnne.ws/VSQCAY


0 Comments

Murphy Bill is DBA (dead before arrival)

6/19/2014

0 Comments

 
The death of the Murphy Bill: On being the national spokesman
Larry Drain


The Murphy Bill as we know is dead.  The Republican leadership in the House announced a change in strategy.  They basically decided to toss in the towel on the more controversial parts of the plan and try to see if they can move forward on elements that seem to have a greater consensus behind them. There may be CPR efforts yet but it appears done.

It was a bill in trouble from the start despite the massive pr campaign that tried so hard to say it wasnt so.  It managed to unify groups that might not agree on what kind of reforms they wanted, but were absolutely sure what they didnt want and that was the Murphy Bill.

Part of the problem was Murphy himself.  He assumed that as "the only psychologist in Congress" he was the obvious and deserved national spokesman for mental health reform.  He wasnt.  Being a psychologist certainly didnt qualify for the role.  Neither did being a member of the House of Representatives.  It seemed that Dr. Torrey annointed him and for some reason they both thought that mattered.  In the end it was hard to know where he started and Dr. Torrey ended and that was perhaps a fatal flaw.

He didnt understand that leadership was built or that it was a two way street.  He alienated people who had lived mental health reform their entire adult lives.  He thought it was about them joining him and never seemed to know it was the other way around.  And he never realized that trust was everything and that when he snuck AOT into the medicare bill he destroyed his chances of trust with people whose support he needed.

He was naive.  The only people who believe federal laws change everything are federal lawmakers and most of them know better.  To say that his law was going to prevent the next shooting was simply ego.  He believed his own press clippings and his posturing before the dead were even buried just seemed like rank opportunism.

Mental health reform is an ongoing effort by many, many people with different values and priorities.  Sometimes it is its own worst enemy.  People who cant stand each other have a hard time standing together for anything.  Murphy I hope has to some degree taught people they can find unity despite their differences.  And maybe the fragile unity borne of him will be the biggest take-away from the entire thing.

He may indeed try again.  He probably will.  Dr.  Torrey most surely will.  He has won many, many short term victories and will doubtless win more, but the big prize has eluded him again. He is not the national spokesman he has annointed himself to be either.


0 Comments

CPR for the Murphy Bill

6/12/2014

0 Comments

 

Murphy misunderstandings

byLarry Drain, hopeworkscommunity

Rep.  Murphy has not went gently into the good night.  Dr. Torrey will never go gently into the good night.  They are trying it sounds like to provide cpr to their bill. Rather the things that didnt work the first time will work on second effort is anyone's guess.  I think sometimes it is really hard for annointed national spokesmen to realize they are not and never were.

But this post is not about that.  It is about a fundamental misunderstanding of the American mental health system that was part of the reason that may have doomed the Murphy Bill from the start.

Murphy seemed to believe we were doing far too much for too many.  He thought people who were doing better in the system were robbing those who were doing poorly of help and resources. And he thought if resources were properly allocated things would be okay. Using terms like "worried well" he seemed to want to pit one group against another or at least give worried family members someone to blame. Somehow, I never really understood how, he seemed to think that this misallocation of resources was the fault of Samsha. It was us against them, with guys in black hats, just lacking an afternoon channel from being great soap opera. People were getting rich, famous and powerful off the worried well and just abandoned those in serious need. It had drama, moral outrage, and more than a little passion. It just lacked truth.

Anyone who had watched or been part of the last few years would tell you that state after state year after year had cut their mental health budgets to the bone. In some places there was only skin. The bone had long since disappeared. It was not that too much was done for too many. Too little was done for everyone. Many people lacked insurance and couldnt even access the services that were there. It wasnt misallocation of funds. It was abandonment. Never, not once, have I ever heard anyone touting the Murphy bill ever acknowledge this.

The baggage from Dr. Torrey obscured their vision. No state bought his love affair with psychiatric hospitals. It was too little bang for way too much bucks. No one believed. It was a cash cow around their necks that threatened to bankrupt their community systems. There was little or no proof it worked. When insurance companies basically stop paying for a service that service is on borrowed time. No one drank the kool aid any more.

There will probably always be psychiatric hospitals. But they will never be the centerpiece of the mental health system again. Putting your money into backline services, what you do when things go wrong, destroys your ability to keep things from going wrong. There was never any conspiracy. People just decided what they thought mattered and all of Dr. Torrey's pr and marketing campaigns just didnt change that. In the end I dont think federal law can bring back psychiatric hospitalization as the gold standard of mental health care. The truth is that even people with "severe mental illness" can and do make it in their communities with effective support and services.

The notion that one group of people needing help was more worthy than another and that they were in competition just seemed like such a mean and stupid notion. It completely just ignored the reality of the bloody battle for funding that is the reality for so many states. It was a pseudo explanation for the fact that state after state just said "Dr. Torrey we dont buy what you say and your way will not increase the amount of services for people with severe needs but radically decrease it."

Count me cynical. Count me way cynical. Murphy lost because it was never about a battle for the "severely mentally ill." It was a battle for Dr. Torrey and a vision found lacking a long time ago.

hopeworkscommunity | June 11, 2014

0 Comments

Larry Drain asks if we will speak

6/9/2014

0 Comments

 

Will you speak???

by hopeworkscommunity

The opposition to Medicaid expansion is loud, organized, powerful, aggresssive and persistent.  Many people believe that the fight is over with in Tennessee. They point to the opposition in the legislature and wonder how they can make a difference. Expansion seems like such a no brainer in so many ways. I cant remember when the state of Tennessee had a chance to do something with the ability to help so many people so much. Yet it seems so far away.

It will take people who believe in it speaking up, speaking a lot, and speaking a lot more. Silence will only confirm what is. If what you say matters, saying nothing matters even more. Will you speak up??

There is no assurance it will make a difference. There is no promise you will be heard. The only promise is what will happen if you dont.

We need each other. Badly. Speak out. Write. Call. Email. Do something and then support someone else in doing the same. Vote each and every day the matters of your heart.

If are voice is to matter then what we do must matter.

Speak today for Medicaid expansion. Speak tomorrow and the day afterward. And continue speaking until you are heard and make a difference. If you dont speak for the people in need now who will speak for you in need.

Tomorrow will be my 13th letter to Governor Haslam. The day after that will be the 14th. Please join me. Contact Governor Haslam today.

hopeworkscommunity | May 29, 2014

0 Comments

Comparison of the Murphy and Barber Bill Proposals

5/10/2014

0 Comments

 
comparison_of_murphy_and_barber_mental_health_proposals.docx
File Size: 27 kb
File Type: docx
Download File

0 Comments

One person's wonderfully inspiring story

5/2/2014

0 Comments

 

May 2014: Kathy Flaherty

Kathy Flaherty works as a senior staff attorney at Statewide Legal Services of CT, Inc.  She has dedicated her professional life to advocating for the rights of the underserved.  A graduate of Kingswood-Oxford School, Wellesley College and Harvard Law School, Kathy has 17 years of experience in poverty law, specifically focusing on housing, benefits, and consumer law. 

Kathy lives with bipolar disorder.  She makes full use of her work place’s very generous sick leave benefits and a flexible schedule.  Kathy was diagnosed her first year of law school after being civilly committed.  She was not permitted to return to Harvard until the next fall, at which point the school put conditions on her return. 

During her third year of law school, she used the Harvard Law School newspaper as the forum to come out about her illness.  Against the advice of the Office of Public Interest Advising, when applying for jobs after law school, she included her position on the council of former patients of McLean Hospital, making her disability fairly obvious.  “If someone didn’t want to hire me because of my disability, I didn’t want that job.” Kathy says that she has gotten jobs because she has disclosed.

Kathy shares that her biggest barrier to the legal profession was getting admitted to the Connecticut Bar.  Despite the fact that she had already been admitted to the Massachusetts and New York Bars, she had to wait for a year and a half and then was conditionally admitted. For the next nine years, she had to report that she was taking her medication, as well as provide a doctor’s note twice a year confirming that she was in fact taking her medication. 

Since 1999, Kathy has served as a volunteer trainer, presenter, and facilitator for Connecticut’s chapter of the National Alliance on Mental Illness (NAMI-CT).  Combining her personal experience as a recipient of mental health services and her legal background, she is able to speak to issues affecting those living with mental illness from a multi-faceted perspective.  Her advocacy work has earned her numerous honors including the Dr. Karen Kangas Advocacy Award from Advocacy Unlimited in 2010.   “Winning an award named for someone who is a role model for advocacy and a very dear friend is humbling.”

Kathy currently serves as a member of the Board of Directors of Advocacy Unlimited, Lawyers Concerned for Lawyers-CT, and the Connecticut Alliance to Benefit Law Enforcement (CABLE). She also serves on Governor Malloy’s Sandy Hook Advisory Commission.  Her goal for the future?  “To continue to do work I enjoy.”

0 Comments

Loss of Innocent Life Due to Lack of Knowledge - Part One

5/1/2014

0 Comments

 
0 Comments

loss of Innocent Life Due to Lack of Knowledge - Part Two

5/1/2014

0 Comments

 
0 Comments

Larry Drain announces the next speaker in Maryville

4/15/2014

0 Comments

 
April 24. 
More on our speaker series
by hopeworkscommunity
       We recently announced the beginning of our speaker series in Blount County sponsored by Maryville Nami.  Our first speaker on March 20 will be Sita Diehl National Director of State Advocacy for Nami national.  I am very excited today to announce our second speaker today.  On April 24 Doug Varney Commissioner for Dept of Mental Health and Substance Abuse will be coming to speak in Maryville.  Tentatively his topic will be the scourge of drug abuse, particularly prescription drugs and meth, their relationship to mental health issues and efforts by the state to address these issues.  It should be a great and informative evening.  Please do all you can to spread the word about both of these presentations.

0 Comments

A New Speaker Series

3/17/2014

0 Comments

 

Mental health issues topic of presentations

By Linda Braden Albert | [email protected] | Posted 14 hours ago

A series of presentations on mental health issues will begin Thursday at the Blount County Public Library. The first presentation is by Sita Diehl, past executive director of the National Alliance on Mental Illness (NAMI) Tennessee and currently national director of state advocacy for NAMI National.

Larry Drain, recently named president of NAMI Maryville, said, “When they asked me to take the job, I really wanted to figure out a way not only to help NAMI but to help the community. Every day, nowadays, when you read the paper or watch TV or whatever, in one way or another, mental health issues are there. There’s a lot of bad information, misinformation, so the idea I had was that if we could bring a series of people to Maryville to talk about mental health issues, that would be a real, real positive thing for this community.”

Diehl’s current position entails her traveling from state to state, organizing efforts to make outcomes for mental health possible in each state, Drain said. “I’ve known her for years, and she was the very first person I asked. Her topic will be about finding support, whether you’re a family member, whether you’re somebody with a mental illness. She will talk a lot about NAMI, some about the mental health system in Tennessee. There will be a question and answer period after she gets through talking. Anybody who comes will be enriched by her.”

On April 24, Doug Varney, commissioner of mental health and substance abuse services for the state of Tennessee, will speak on mental health and drug addiction. Drain said, “I think he will talk some about prescription drugs and meth, what the state is trying to do to deal with some of these things. Especially in Blount County, it is such a live issue. ... He knows the topic inside out.”

Additional speakers in upcoming months include Ben Harrington, executive director, East Tennessee Mental Health Association; Scott Ridgeway, director, Tennessee Suicide Prevention Network; Allen Doderlain, national president, Depression and Bipolar Support Alliance; Pam Binkley, recovery coordinator, Optum Health, who will talk about emotional first aid; Lisa Ragan, director, Office of Consumer Affairs, Tennessee Department of Mental Health, who will speak on peer support, recovery, etc.; and Elizabeth Power, a nationally known expert on post-traumatic stress disorder. Mental health professionals from Blount Memorial Hospital have also been invited to speak.

Drain said, “I think this will be a quality addition to the Maryville community and I hope lots of folks will come. ... For a lot of folks here, the whole area of mental health, mental health treatment, the resources involved and things like that are so confusing. My hope is that all these speakers can shed some light, bring some facts and really help people in the Blount County area.”


Larry Drain, hopeworkscommunity

0 Comments

Medicare rule changes adversely affect our seniors

2/27/2014

0 Comments

 

Medicare Rule Changes May Restrict Drug Choices for Seniors
http://guardianlv.com/2014/02/medicare-rule-changes-may-restrict-drug-choices-for-seniors/
(from Easy Browser)

The CMS decisions about which drugs to protect were supposed to be based on whether the drugs were needed to prevent increased doctor visits, hospitalizations, persistent disability, incapacitation or death that would otherwise occur within seven days if the drugs were not given. The choices about which drugs to remove from protection fail that test because, with acute mental illness, seven days without medication could easily lead to hospitalization, incapacitation or death. The same constraint exists for some 500,000 transplant patients. Seven days without the right medication could result in transplant rejection.

The quote above is from the article linked.  My jaw dropped when I read it.  CMS is proposing to drop certain drug classes from the status of protected medication.  The idea is to save money.  The article says it may save around 10% I believe.

My jaw dropped when I read the criteria.  It basically says that if doing without a drug for 7 days wont kill you, incapacitate, or put you in the hospital you really didnt need it to the point where your access to the medication is guaranteed to begin with.

WHAT ABOUT THE EIGHTH DAY??

Is it just me or does this not sound simply stupid, simply arbitrary and simply mean?  How in the world do you decide as a matter of cost containment that if someone doesnt die fast enough that dont really need a medication?  Who should have that kind of power??  Should anyone??

I read all the stuff about percents...percents of cost...percents of savings.  There is another "p" word-- PEOPLE.  Somehow it seems like it got lost.

Larry Drain at HOPEWORKSCOMMUNITY

0 Comments

Reminder: ACA Enrollment

2/27/2014

0 Comments

 

ACA Enrollment Ending Soon -

 

Hi folks, we just want to remind everyone that the enrollment period for Patient Protection and Affordable Care Act is drawing to a close for this season. The last day to enroll will be March 31st. To be covered by April 1st, the last day to enroll is even earlier - March 15. Enrollment will start up again November 15th and go through January 15th.

  

Below are links to Tennessee events and resources you might contact for enrollment assistance. Please forward this email to anyone and everyone you know who needs assistance or needs to hurry up and get covered already! 

 

  • Get Covered Tennessee Event Calendar: Click Here
  • Find Help on Healthcare.gov: Click Here

 

If you've already enrolled we'd love to hear from you. Click here to share your story and tell us about your enrollment experience.

 

 

Thanks everyone and best of health to you from all of us at THCC

By: Tennessee Health Care Campaign

 

 

0 Comments

No one cares about crazy people

2/23/2014

0 Comments

 

Scott Walker Emails: Former Top Aide Wrote

'No One Cares About

Crazy People'

Chris GentilvisoThe Huffington Post02/22/14 11:31 AM ET

Wednesday's release of thousands of pages of emails from Scott Walker's tenure as Milwaukee County Executive show a former top aide wrote that "no one cares about crazy people."

Back in 2006, the Milwaukee Journal Sentinel reported on the death of Cindy Anczak. The 33-year-old woman died of starvation complications while being treated at the Milwaukee County Mental Health Complex for bipolar disorder.

According to the Center for Media and Democracy's PR Watch, Anczak's parents filed a legal complaint in October 2010, which was brought by Walker staffers to the attention of then-Deputy Chief of Staff Kelly Rindfleisch.

"Totally coincidental to the election," replied Walker campaign advisor RJ Johnson, about the timing of the filing.

"Corp council [the County's attorney] wants to offer 50-100k," emailed Rindfleisch.

"Ok - any time after Nov. 2nd would be the time to offer a settlement," replied Keith Gilkes, who headed Walker's campaign.

"Barrett is going to make this the center of his campaign," Rindfleisch wrote in another email.

"yep and he is still going to lose because that is his base," replied Joan Hansen, a County official.

"Yep," Rindfleisch wrote. "No one cares about crazy people."

The AP noted on Wednesday that Rindfleisch was convicted in 2012 of felony misconduct in office for doing campaign work for a GOP lieutenant governor candidate on government time. She was sentenced to six months in jail and three years of probation, and is appealing her conviction on the grounds that Fourth Amendment rights were violated.

"Most of those would be four or more years old and they've gone through a legal process ... a multi-year extensive legal process by which each and every one of those communications was reviewed by authorities," Walker told reporters in Madison on Wednesday. "I'm confident that they reviewed them and they chose to act on the ones they've already made public."

0 Comments

Larry Drain: Open Letter to Governor Haslam

2/19/2014

0 Comments

 

A very personal plea for medicaid expansion: a letter to the governor

By Hopeworkscommunity

Dear Governor Haslam:
I want to start by first thanking you for your decision to restore funding to peer support centers in Tennessee.  As a mental health advocate I can tell you it is one of the best decisions you have ever made and I am so thankful you made it.

But my decision to write this letter is about much more than the peer support centers.  In your state of the state message you talked a couple of times about the importance of government giving good customer service.  You seemed to put a lot of stock in that idea.  It was not the first time I have heard you speak about it.  The decision to fund peer centers was a great example of good customer service.

My hope is that you will consider my request in the light of that concept.  I am in a desperate situation and without your help I dont know where to turn.

I want to ask you to reconsider your stance on medicaid expansion.  I know you are in a tough spot.  Anything that makes the Tea Party mad faces great obstacles in Tennessee and few things make them angrier than health care reform.  Perhaps what I am asking you is impossible for you to politically do.  Several people have told me it is.

As I said my situation is desparate.  Let me take a minute to describe it.

I have been “free” of health care insurance for many years.  It is a freedom I would gladly lose.  I have been told that I need surgery.  The surgery is a minor one that thousands of people undergo every year.  No insurance means no surgery.  The doctor tells me the lack of surgery though may not be a minor thing though, that in fact if my condition should become an emergency my life may be in danger.  I pray every day not to die a preventable death.  Many people have far more dangerous situations than me and face far more immediate risk.  Being poor should never, at least not in Tennessee be the cause of anyone’s death.  And without action on your part it will be though.

My desperation though is not based purely on issues of my health.  It goes far deeper than that.

My wife is disabled and has been on TennCare for a while.  She is a TennCare miracle.  Without it she would have died long ago.  Even with all her progress without it she would no live a month.  In order to save her insurance and in a very real sense her life after 32 years of marriage we have had to separate.  I dont know, without TennCare expansion we can ever live together again.

The situation is very complex, but let me share it with you as briefly as I can.  My wife receives SSI for disabilities.  Recently I took retirement from Social Security.  It was the worst decision I have ever made.

We found out that in Social Security’s eyes, even though our combined checks left us below poverty, we made far too much money.  Linda lost over $700 and her check was reduced to $20 a month.  I told Social Security that I would have to get a job in order for us to survive.  We figured without her check we had about $40 to live on for the month of January and we just cant live like that.  Who could??

Social Security told us that since her TennCare was disability based and not income based (like it would be if TennCare was expanded) that if I made over $85 a month her TennCare would be lost.

I love my wife and wont let her die.  The day after Christmas we separated.  The hope is that with a separate address she can regain her SSI check.  My hope is to move as close to her as possible.  Right now I do not see how we can ever live together again.

You do not make the rules for Social Security and none of that is your fault.  The law is what it is and despite its cruelty and hurtfulness we have no choice but to do our best to live with it.  A law that supports the break up of thousands of marriages seems so evil, but I dont right now see how I can affect it.

I am asking for your help though.  Maybe I dont have the right but I have no where else to turn.  I know you deeply love and care for your wife.  What would you say to me if our situations were reversed??

Please act.  Whatever the resolution please act.  My wife will keep her TennCare.  I will never do anything to put that in jeopardy.  Without your help though my marriage will not survive and for Linda and I that is a death of a different sort.

 

 

 

 

 

.


0 Comments

Patient Protection/Affordable Care Act

1/23/2014

0 Comments

 
0 Comments